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ㆍ 제목 ELSI practices in genomic research in East Asia: implications for research collaboration and public participation
ㆍ 조회수 1098 ㆍ 등록일시 2016-12-08 10:15:22
ㆍ 작성자 관리자
ㆍ 첨부파일

 

 발행년

 2014

 구분

 국외학술지

 학술지명

 Genome Medicine

 관련링크

 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4062049/

 

 

 

ELSI practices in genomic research in East Asia: implications for research collaboration and public participation

 

 

  • 저자명

Go Yoshizawa, Calvin Wai-Loon Ho, Wei Zhu, Chingli Hu, Yoni Syukriani, Ilhak Lee, Hannah Kim, Daniel Fu, Chang Tsai, Jusaku Minari, and Kazuto Kato

 

  • 학술지명

Genome Medicine

 

  • 권호사항

6(5):39

 

  • 자료유형

국외학술지

 

  • 언어

English

 

  • 발행년도

2014년

 

  

  • Abstract

Common infrastructures and platforms are required for international collaborations in large-scale human genomic research and policy development, such as the Global Alliance for Genomics and Health and the ‘ELSI 2.0’ initiative. Such initiatives may require international harmonization of ethical and regulatory requirements. To enable this, however, a greater understanding of issues and practices that relate to the ethical, legal and social implications (ELSI) of genomic research will be needed for the different countries and global regions involved in such research. Here, we review the ELSI practices and regulations for genomic research in six East Asian countries (China, Indonesia, Japan, Singapore, South Korea and Taiwan), highlighting the main similarities and differences between these countries, and more generally, in relation to Western countries. While there are significant differences in ELSI practices among these East Asian countries, there is a consistent emphasis on advancing genomic science and technology. In addition, considerable emphasis is placed on informed consent for participation in research, whether through the contribution of tissue samples or personal information. However, a higher level of engagement with interested stakeholders and the public will be needed in some countries.

ㆍ 이전글 바이오뱅크 운영의 주요쟁점과 전망 - 전문가 인식조사를 중심으로/The Principal Issues and Prospects of Biobank Management
ㆍ 다음글 유전자 맞춤의학(Personalized Genomic Medicine)의 사회적 함의/Social Implications of Personalized Genomic Medicine