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ㆍ 제목 유전체 맞춤의학 연구와 위험의 개념 이해/The Concept of Risk in the era of Personalized Genetic Medicine
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ㆍ 첨부파일

 발행년

 2012

 구분

 국내학술지

 학술지명

 생명윤리정책연구

 관련링크

 http://www.riss.kr/link?id=A99889052

 

 

 

 

유전체 맞춤의학 연구와 위험의 개념 이해/The Concept of Risk in the era of Personalized Genetic Medicine

 

 

  • 저자명

이일학, 김성혜, 유승협, 김소윤

 

  • 학술지명

생명윤리정책연구

 

  • 권호사항

Vol.6 No.2 [2012]

 

  • 발행처

이화여자대학교 생명의료법연구소

 

  • 자료유형

학술저널

 

  • 수록면

23-40(18쪽)

 

  • 언어

Korean

 

  • 발행년도

2012년

 

 

 

  • Abstract

​Personalized genetic medicine(PGM) is an attempt to understand the relationship between human genetic information and diseases, and to find a potential treatment and diagnostic method. Large research projects are under way with social concerns. ELSI research is aimed at understanding the implication of an innovative research from humanistic perspectives, and communicating the understanding with society and with scientists, thereby providing practical and concrete recommendations and guides. Of the ELSI studies, ethics of PGM research searches the value problems embedded in various perspectives on PGM and tries to answer the question whether it is permissible to implement certain types of research. A framework for ethical analysis is proposed and explained. The concept of risk in general was explored and its implication for ethical review of PGM in relation with the natures of PGM was given. The risks can be categorized: risks associated with the inherent characteristics of research/practice, risks associated with human eras and risks related social construction and (in)justice. Understanding the nature of risk will help the IRB’s reviewing the PGM researches. 

ㆍ 이전글 환자의 프라이버시 및 정보보호의 법적 근거 고찰/Analysis of Legal Basis Regarding Patient Privacy and Protection of Information
ㆍ 다음글 유전정보 기증으로 발생 가능한 피해의 유형과 확률/Types and Probability of Harm that could occur because of Donated Genetic Information