Aim

• Developing and training of Human Genomic Data Protection Guidelines
• Improving and disseminating of a form for explanation and consent of human genomic resource donors
• Human genome-related intellectual property rights research
• Establishment of the platform for Genomic ELSI researchers’ interaction

History

Multidisciplinary Post Genome Project – the Center for ELSI

Research period: 2013. 12. 01. ~ 2016. 11. 30.

Activity

2016년

9. 19 – 9.21 : Participating in 12th Scientific Workshop of the International Cancer Genome Consortium (ICGC)

11. 6 – 11. 7 : Participating in 1st Dialogue of Asia-Oceania Genomics Bioethics Network Workgroup​

11. 10 : Forum of the Center for Genomic ELSI / Training of the Human Genomic Data Protection Guidelines for specialist

11. 23 : ELSI Training for specialist

11. 28 : ELSI Training for public – students

11. 30 : ELSI Training for public – Alliance of Patients Organization

2015년

9. 28. - 10. 2 : Participating in 22nd Session of the International Bioethics Committee(IBC) and 9th Session of the World Commission on the Ethics of Scientific Knowledge and Technology(COMEST), (Paris, France)

9. 23. : Pre-training of Human Genomic Data Protection Guidelines for practitioners

9. 22. - 9. 23. : International workshop for Genomic ELSI

8. 2. - 8. 6. : Participating in 21th Annual World Congress on Medical Law(WAML), (Coimbra, Portual)

7. 22. : Training of Human Genomic Data Protection Guidelines for Researchers

5. 21 - 6. 4. : Site visit on the Korean Biobank

3. 14. - 3. 17 : Participating in Human Genome Meeting 2015 (Kuala Lumpur, Malaysia)

2. 15 - 2. 17. : Participating in 10th Scientific Workshop of the International Cancer Genome Consortium(ICGC), (Verona, Italy)